Catch up, part one.... (Ikea, caffeine and power tools.)

So since the last post I have had a couple of really great days out, and a fair few days recovering in bed! It's been lovely to spend find some time with my friends; even if it does take a lot out of me, the main thing is that I enjoy it. I just think that it is better to have 3 really great days, followed by a few days of increased discomfort/illness - than 6 days of feeling bored, uncomfortable and ill! 

I had a great trip to Ikea and the range with my friend Ellie, who is also a crafty person! We managed to get quite a few things that we wanted and many things that we had no idea we wanted, and needed to complete our lives! It was a long day though, and so Ellie pushed me around Ikea in a chair so that I didn't have to walk... 

As you can see, I had some sexy wheels for the day! Ellie seamed to spend vast quantities of the day telling me off for trying to wheel myself around though. I thought I could give it a go - but the myopathy seams to be
killing my once bulging biceps (... okay maybe not bulging) and it made it look like Ellie had been torturing me all day and leaving me to fend for myself ! Which she had secretly, cause shes really mean! We also went and had a little look around Costco, in the hope that we would find some bargains (I wanted a giant tub of flying saucers!) but to no avail. We left empty handed, and with our dreams of it being an Aladdin's cave full of yummy treats dashed. Or sorrow didn't last long though, and we managed to pull ourselves out of our deep hole of disappointment to go and buy unnecessary, yet much coveted, craft supplies. Muhahahahaa!

We then finished the day with Starbucks and an all you can eat Chinese buffet! I'm not normally a hot drinks person, but I was cold and in need of caffeine so I had a yummy latte. I was also impressed that not only did the lady in Starbucks write my name without asking, she even spelt it correctly! By the time we had finished it was easily 8pm and I was starving, generally I don't view all you can eat buffets as a challenge, however what with me being so hungry it probably looked like that to anyone around. It was a most welcome end to a lovely day.

Then, later that week I went to see my dad, and we somehow managed to build a kitchen. Well, not the whole kitchen - that would be beyond impressive, but we moved doors around and put them on cupboards etc. Dad even let me loose with power tools, and no, I didn't break anything (or anyone)! It just goes to show that you can do anything you want if you put your mind to it, and it also shows that even with only one working hand, my dad can do a better job than most can with two. Makes me very proud to be able to call him my dad.

Also, my dolls house is coming along nicely. Its all painted and has its windows fitted... My skills know no boundaries. I can fit kitchens, windows and even build houses. I also have a newly assembled 'tool kit' which contains a fair few items which I think make me significantly more dangerous than I previously was... Such as a hacksaw and various types of craft knives!

My friend Stacey also successfully beat off numerous other candidates to get a job working in a local primary school. Obviously I am very, very proud of her and think that she will do a great job - so I treated her to some of my famous home cooking, fake champers and some prezzies! Well done Gavy,  go get 'em!


















Anyways, this is the end of part one! Only because I'm too lazy to finish writing the rest ;)

Take care,
Kirsty x

Sooo... Since my last post very little of any interest has happened! I'm home and trying to get back to some sort of routine, but it's taking time and effort to get there! 

I've recently managed to buy a Cuttlebug second hand, off a friend of a friend and I'm enjoying it far too much!! It's really hard work to turn the handle, cause I'm all pewney and weak! But look! Cuttlebug! 

I gave an interview for Allergy UK, where I spoke about the effects of indoor allergens on my asthma the other week. Was rather nervous - but it went well, and the resulting podcast seams to have got some good comments. It's also gone onto YouTube! Here's the link if you want to check it out...

http://bit.ly/1hzpeAy

Don't forget to comment and let Allergy UK know that it's actually been worth the effort!

There's been some sad news too, my best friends bunny, Jasper died. It was very quick, he picked up an infection which caused septicemia , and died later that day. Poor Jasper. He was a lovely bunny and we will miss him lots. 

I have been working on my dolls house a lot, and it's looking really good. The windows are all in, the roof tiles are on and painted and I just need to do the chimney and the outside will be finished. I'm very pleased with it so far - I can't wait to start sorting the inside, it won't be long till I'm ready to do that :) 

I've also managed to discover that I can watch season 9 of Greys Anatomy on love film! It's very sad how exctited it made me, but I actually watched the whole thing in a couple of days. Oh, and now I can't cope with the whole waiting for season 10 thing. It's driving me nuts. But, season 9 was amazing, and there were many moments which made me go 'Ahh', 'Eeeeeeep!' and 'Awhhh' - there were times which led to this being posted on my timeline...

Yes... I'm that sad.

Tuesday was clinic. It was a monumentally frustrating as normal and as usual, I left wanting to either kill myself, or someone else... I'm not sure which option, but I was close to carrying one of them out! My consultant has seemed to have forgotten about just about everything we had discussed before... He wasn't supposed to be messing around with things, but leaving them as they were until Heartlands see me and letting them decide what to do! But then considering he doesn't even seam able to read the BASIC things about me... Like the fact that I'm diabetic and that he's failed numerous times to get me off steroids, and it's not worked... I cant expect too much.

On the positive side, my lung function was around 65%, which is about 10% better than last time, and my ENO was better too. My GP is also sorting out my pain management, which has been great, it's meant that I can actually get comfy at night and get some sleep. 

I don't think there's much more to say! I'll update soon when I actually have something exciting to add.

Take care,

Kirsty x

  

So, I've been home about a week since my last admission. Unfortunately the second half of the admission was just as much of a shambles as the first! They carried on making silly mistakes regarding my care, some of which were boardering on dangerous! Still managed to pull some silly faces though!! 

Rocking the 'sticking my tounge out' pose! 

So after the night of the aminophyline drama, we gradually reduced it and took me off of it. Unfortunately that night it all went boobies up, and I splatted spectacularly! Around 10pm they had to call the on call reg, cause my sats were around 85% on 8L and I sounded like a pair of out of tune bagpipes. He came along and gave me more magnesium, hydrocortisone and aminophyline - and stabbed me for numerous ABGs until he gave up and admitted that he wouldn't be able to get one!! Then along came the critical care team who wasn't impressed by the lack of ABG and wanted to try. Thankfully he told them that he wasnt going to keep stabbing me. 

Things went okay after that. I got better and was so excited when I managed to get my O2 down to a blue valve! Annoyingly they were very rushed and did their best to discharge me ASAP. To the point where I had only been off 02 for an hour or so, and off of amino for about 12 hours. Not that I'm complaining about getting out quickly - but some discharge planning wouldn't have gone a miss, because they managed to discharge me with the wrong medication etc.

In other news, my course is going well, and I've managed to get between 80 and 90% in my past two assessments! Which makes me feel better about it all - at least it's not all going right over my head! Rather worried about some of the other assessments, but I will just cross that bridge when I come to it and hope for the best. 

I've also started a dolls house! Stacey got me one for my birthday and I've been working on it - it's all put together and the decorating of the outside is next on the cards :) Tilly seams to like it too and has taken residence in the living room...

 

Bless her! She does look very cute in there though, and it's turned into her hidey-hole for when fireworks go off...!

Me and Stacey had an evening at the cinema the other day, watching Bad Grandpa. Was the funniest film I've seen in ages - and the night ended in nandos and the purchasing of a Eeyore onesie, a good night over all! 

Oh and Emma sent me some pretty amazing socks! I love them :) They are also really comfy too, all soft and cosy. We keep an exchange of letters/prezzies and postcards going between us, so it won't be long until I send Emma's - just got to finish it off - I wont say what's in it incase she reads this and it spoils the surprise! 

I'm gonna go now, starting to nodd off and I really need to sleep! Take care -

Kirsty.